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Intellectual & Developmental Disabilities
Exam 1
68
Education
Graduate
03/05/2012

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Cards

Term
Consequences/Importance of ID Definition
Definition
Eligibility
Subjected to
Exempt from
Included in
Entitled to
Term
How many people in the US have an ID?
Definition
7-8 million people
Term
How many families in the US are affected by ID?
Definition
1 in 10 families
Term
What percentage of the population has ID? (APA)
Definition
2.5 %
Term
How does one get classified as ID?
Definition
2 standards deviations below the mean
Term
Definition of ID
Definition
characterized by significant limitations in both intellectual functioning and adaptive behavior expressed in conceptual, social, and practical skills; it presents before age 18
Term
Developmental Disability
Definition
-umbrella term
-includes physical and intellectual disablities
-DEFINITION-severe, chronic physical and/or cognitive disability that manifests before age 18 and is likely to be lifelong
-tends to be more significant than ID
Term
ID & DD
Definition
-if apparent at birth, it is usually DD
-ID individuals can progress out of their classification
-DD is life long
Term
3 causes of intellectual disability
Definition
Infections (TORCH)
-Toxoplasmosis
-Other
-Rubella
-Cytomeglovirus
-Herpes Simplex Virus
Brain Damage
Genetics
Term
Toxoplasma Virus
Definition
Parisite
found everywhere in warm-blooded animals
frequent in cats in the US
can be infected by eating undercooked meat, ingesting dirt
Term
Other infections
Definition
Hep B, Syphallis,
Term
Rubella
Definition
-measles
-contracted during pregnancy
Term
Cytomegalovirus
Definition
mononucleosis
contracted during pregnancy
5% of embryo's develop mono
Term
Herpes Simplex II
Definition
Can remain dormant
if there is an outbreak during birth, can result in brain damage or death
Term
3 Types of Brain Injury
Definition
1) Traumatic Brain Injury-occurs from exterior physical force (e.g. shaking baby syndrome)
2)Congenitcal Brain Damage-Hereditary or Environmental
-Fetal Alcohol Syndrome-distinct facial features, poor coordination, heart deficits, anxiety, malformed joints, good days/bad days
3) Progressive brain damage-manifests after birth-e.g. Battens disease-inherited metabolic disorder
Term
Genetic Causes
Definition
down syndrome
fragile x
angelman syndrome
williams syndrome
bardet-biedle syndrome
.....
Term
Down Syndrome
Definition
-most common genetic ID
-not specific to any race/gender
-1/800 births
-trisomy 21
-chances increase with mother's age
-smaller brain volume, shorter diameter
-distinct slant from front of head to back
-slanted eyes
-flat face
-profound crease in hand
-blood test is only way of ID'ing it
-susceptible to alzheimer's
-Mosaic Down Syndrome-mutation occured later in gestation, so not every cell has trisomy 21
Term
Fragile X Syndrome
Definition
-second leading cause of genetic ID
-leading cause of genetic ID in males
-FMR1 mutation-mutation of gene on X chromosome, excessive copy of gene
-1/4000 males, 1/6000 females
-recessive
-one study suggests slightly higher risk in caucasian than black
-lower ears
-longer face
-broad forehead
-pronounced jaw
-hyperflexive joints
-flat-footed
-enlarged testicles at adolescence
-poor social development
Term
Williams Syndrome
Definition
-mutation of chromosome 7, portion of chromosome is missing
-random, not inherited
-1/8000
-equal opportunity
-sunken nasal bridge, upturned nose, small chine, wide full mouth, puffy skin around eyes, light eyes with starburst design, abnormally long neck, sloping shoulders
-susceptible to cardiovascular disease and hearing loss
-varying degrees of cognitive impairment (motor skill deficincies seen first)
-good expressive skills
-attention may improve with age
-concrete thinkers, spatial deficits
-easily stressed
-a lot of potential with support
Term
Angelman's syndrome
Definition
-absence of certain group of genes that control ubiquitin production
-chromosome 15
-inherited or random
-1/12-20,000
-equal opportunity
-1,000-5,000 cases in N.A.
-protruding toungue, smaller head
-feeding issues
-developmental delays apparent at 2-12 months
-may experience seizures by age 3
-100% have developmental delay, speech problems, movement and balance problems, frequent laughter, short attention span
Term
Bardet-Biedl Syndrome
Definition
-Mutation on chromosome 3
-polydactyl limbs
-Intellectual Disability
-development of reproduction system affected
-renal failure--> death
-obesity common (do not register fullness)
-impaired speech
-poor coordination
-1/140,000 (1/13,500 in Kuwait and 1/17,000 in newfoundland)
Term
Lawrence Moon syndrome
Definition
-rare autosomal recessive gene disorder
-mutation on chromosome 2
-ID
-deformation of reproductive organs
-maturity, behavior, coordination problems
Term
Cackayne Syndrome
Definition
-Mutation in cell repair genes on chromosome 5
-1/100,000
-Fast aging process
-exposure to light increases aging
-not related to cancer
-eyes sunken, ears deformed, disproportionate
-cannot completely close eyelids
-progressive in nature
-Type I-not seen at birth, may live through adolescence
-Type II-seen at birth, short lifespan
Term
Cri du Chat Syndrome
Definition
-Chromosome 5-missing piece of short arm
-1/20-50,000
-More common in females
-random mutation, not inherited
-feeding problems, poor growth, severe ID, agression
small head/jaw, eyes spread apart and have downward slant, webbing between fingers and toes, flat nasal bridge
-apparent at birth
-ID becomes more severe with age
Term
Cornelia du Lang Syndrome
Definition
-Nipped gene on chromosome 5
-1/10-30,000 births
-excessive body hair
-long eye lashes
-tip of nose pointed
-significant developmental delays
-cup-shaped mouth
-hearing/vision loss
Term
Rubinstein-Taybi Syndrome
Definition
-1/300,000
-No known cause
-thick and low-lying hair
-thick thumbs and first toes
-ADD
Term
Tay-Sachs
Definition
-Absence in Hex-A-responsible for metabolizing fatty acids in cells
-not apparent at birth
-loss of peripheral vision
-innappropriate response to stimuli
-lose skills they have learned
-seizures common
-1/27 Ashkenzi Jews are carriers
-1/250 general population
Term
Prader-Willi Syndrome
Definition
-deletion of chromosome 15
-1/12-15,000
-decreased muscle tone
-hypergonadism
-if inherited by father, 70% will get prader willi
-same deltion inherited by mother, angelman's syndrome
-inherited/mutational
-capacity to learn
-obsessive compulsive behavior
Term
Mild Intellectual Disability
Definition
-Pervasive learning problems
-lack of social adjustment, motivation, and or self management skills
-discrepancy between their actual intellectual ability and their actual achievement
-come with a variety of labels
-not visibly apparent
-cognitive, academic, and social characteristics
-2-4 years behind peers
-2-3 standard deviations below norm
Term
Three groups of Mild Intellectual Disability
Definition
1) Specific Learning Disabilities-does not fall under regular ID-can occur in specific curricular areas, may be pervasive, does not cover sensory impairments, does not cover ID
2)Emotional/behavioral disturbance-functioning as ID even though they are intellectually capable-intelligence tests not showing/explaining deficits-innappropriate, dangerous behaviors-paranoia, obsessiveness, rigitity, schizophrenia
3) Mild MR
Term
Incidence of Mild ID
Definition
specific learning disabilities-50%
mental retardation-10.6%
emotional disturbance-8.2%
Term
Remediation vs. Compensation
Definition
remediation-modifying instruction
compensation-using assitive technology to support student growth

-30% remediation, 70% compensation and adjust according to growth and IEP (Edyburn, 2002)
-want to build a good foundation without affecting quality of life
-fair is not equal
Term
Down Syndrome
Definition
-chances increase with mother's age
-25 years- 1/1,250
-45 years- 1/30
-diagnostic tests-length of long arm or leg bone, length of nasal bridge, size of renal pelvis, small bright spots in heart, etc.
Term
Epilepsy
Definition
-brain disorder
-normal pattern of neuronal activity is disrupted
-must have 2 or more seizures to have epilepsy
Term
Epilepsy Incidence
Definition
-3 million americans
-315,000 students in US
-1/100 people develop epilepsy
-1 in 10 people will have a seizure in their lifetime
-more common than cerebral palsy, parkinson's disease, and multiple sclerosis combined
Term
Causes of Epilepsy
Definition
70% of seizures are unknown causes
30%:
-brain trauma
-brain tumors
-poisoning (lead)
-infections of brain
-brain injury at birth
-abnormal brain development
Term
2 Seizure Types
Definition
Generalized-involve the whole brain-absence and tonic-clonic
symptoms-convulsions, staring, muscle spasms, and falls

Partial Seizures-involve only a part of the brain-common types include simple partial and complex partial-syptoms relate to the part of the brain affected
Term
Absence seizures
Definition
-Gneralized seizure
-pause in activity with blank stare
-brief lapse of awareness
-possible chewing or blinking motion
-usually lasts 1-10 seconds
-may occur many times/day
-May be confused with daydreaming, lack of attention, ADD
Term
Tonic-clonic seizures
Definition
-Generalized seizure
-sudden, hoarse cry
-fall
-convulsions
-shallow breathing and drooling
-loss of bowel control
-skin, nails, lips may turn blue
-generally lasts 1-3 minutes
-followed by confusion, headache, tiredness, soreness, and speech dificulty
Term
Tonic-clonic First Aid
Definition
-Stay calm and track time
-check for epilepsy seizure disorder I.D. (bracelet, necklace)
-protect student from possible hazards (tables, chairs)
-turn student on side
-cushion head
-after seizure, remain with student until awareness of surroundings is fully gained
-provide emotional support
-document seizure activity
Term
When is a seizure an emergency
Definition
-First time seizure
-convulsive seizure lasting more than 5 minutes
-repeated seizures without regaining consciousness
-more seizures than usual or change in type
-student who is injured, has diabetes, or is pregnant
-seizure occurs in water
-normal breathing does not resume
-parents request emergency evaluation
Term
Simple Partial Seizures
Definition
Full awareness maintained
-rhythmic movements
-sensory symptoms (tingling, weakness, sounds, tastes, smells)
-Psychic symptoms-deja vu, hallucinations
-usually lasts less than 1 minutes
-may be confused with acting out, mysical experience, or psychosomatic illness
Term
Complex Partial Seizure
Definition
-Awareness impaired/inability to respond
-often begins with blank dazed stare
-clumsy or disoriented movements
-often lasts 1-3 minutes
-often followed by tiredness, headache, or nausea
-may become combatative if restrained
-may be confused with drunkenness or drug abuse and agressive behavior
Term
Complex Partial Seizure First Aid
Definition
-Stay calm, track time
-Check for medical ID
-Gently direct away from hazards
-don't expect student to abey verbal commands
-stay with student until fully aware
-if seizure lasts 5 minutes beyond what is routine for that student or if another seizure begins before full consciousness is acheived, follow emergency protocol
Term
Convulsive Seizure in a wheel chair
Definition
-do not remove from wheelchair unless absolutely necessary
-secure wheelchair to prevent movement
-fasten seatbelt loosely to prevent student from falling
-protect and support head
-ensure breathing is unobstructed and allow secretions to flow from mouth
-pad wheelchair to prevent injuries to limbs
-follow relevant seizure first aid protocol
Term
convulsive seizure on a school bus
Definition
-safely pull over and stop bus
-palce student on his/her side across the seat facing way from the seat back (or in aisle if necssary)
-follow standard seizure first aid
-continute to destination once full consciousness and awareness is regained
Term
convulsive seizure in water
Definition
-support head so that both the mouth and nose are above water
-remove student from the water as soon as it can be done safely
-if the student is not breathing, begin rescue breathing
-always transport student to the emergency room even if they appear fully recovered
Term
ketogenic diet
Definition
-based on a study that burning fat for energy has an antiseizure effect
-high fat content, no sugar and low carb and protein intake
-requires strong family, school, and caregiver committment (no cheating allowed)
Term
Vagus Nerve Stimulator
Definition
-implanted just under skin in the chest with wires that attach to vagus nerve in neck
-delivers electrical stimulation to the vagus nerve in the neck that relays impulses to widespread areas of the brain
-primarly used to treat partial seizures when medication is not working
-use of special magnet to active the device
Term
diazepam rectal gel
Definition
-used in acute or emergency situations to stop a siezure that wont stop on its own
-approved by FDA for use by parents and non-medical caregivers
-state/school district regulations often govern use in schools
Term
ADHD
Definition
-3-7% school aged children have it
-2X more common in boys
-22% increase from 2003-2007
-Diagnosed based off of behavioral symptoms
Term
Type I, II, III ADHD
Definition
Type I-inattentive-hard to follow instructions, easily distracted, difficulty remembering daily routines

Type II-hyperactive-talks, fidgets, restless, impulsivity control, hard to wait their turn

Type III-Combined Type-mix of both

*has to be present by age 7 for combined type
Term
ADHD Treatments and side effects

American Academy of Pediatrics Guideline for ADHD Medication
Definition
-Stimulants-best known, most widely used-70% respond positively-ritalin, dexadrine, adderall

-Non-stimulants-short acting (24 hours)-trial and error, not approved by FDA, not 1st line of defense

Side effects-sleeplessness, lack of eating, irritability, increase in HR

AAP-Pre-K-should be behavioral therapy only (severity may determine use of stimulants)-elementary school-behavioral therapy and/or FDA approved stimulants-adolescents-FDA medications AND behavioral therapy
Term
Methods for Parents and Teachers to use with ADHD
Definition
-expectations at home should be expectations everywhere
-create structure
-help organize
-clarify everything
-frequent praise
-limit choices
-social-skills training
-follow through with everything, do not cop-out or make excuses for child
Term
Adapting the classroom environment for included learners
Definition
1) Create a structure optimal for learning-Robinson (1990) found that class size is most importatn for K-3, but decrease every year, same strategies in small groups can also be applied to large classrooms
2)inventory and evaluate all available teaching materials
3) develop a classroom routine-scedules plan
4) prioritize goals, assess-know the curriculum/standards, do diagnostic tests
5) create a system of documentation-accountability
6) appreciate small successes-you dictate attitude in the classroom
7) stay curent on best practice-ever-changing field
8) establish positive working conditions-build mutual respect
9) clearly mark work areas-avoid distractions, provide diagrams, etc.
10) reduce audtory/visual distractions-keep it simple, less is more
11) use strategic seating-rows, groups, can you see every child? can every child see you? for mild ID-closer to front, middle is preferred
12) use visual cues/schedules
13) specify classroom rules-psoitively frame guidelines
14) organize staff scheduling-gernal and invididual classroom schedules
15) organize materials
Term
Curricular adaptations
Definition
-assess pre-requisite/foundational skills
modify activities as necessary to allow learner to respond in their strongest modality-asess same content standard but in a less complex, more concrete method
-embed generalization-change context often

eg-touch math
Term
Instructional adaptations
Definition
-utilize different instructional formats-large group, small group, 1 on 1 (peer, 2X more achievement than computer guided and 3X more achievement than reducing class size, and 4X as much achievement than lenghtening the school day by 1 hour)
-provide choices
-utilize strenghts to build on weaknesses
-ulitize cooperative learning
-shape task completion
-have a variety of materials available
-model the expectation of a manipulative/example
Term
Behavior Management
Definition
1) Identify behaviors in need of attention
2) define behavior according to its topography and function
3) fhoose and implement a reinforcement system
4) plan to teach replacement skills-know the inappropriateness of the behavior
Term
Behavior management strategies
Definition
-state expectations clearly
-catch the child being good
-use specific praise
-at a neutral time, describe alternatives to the challenging behavior
-present limited choices
Term
Early Intervention
Definition
A sytematic approach of early and continual treatment from a team of professionals focused on meeting the needs of individual children and their families
-mandated by federal legislation

Birth-3-covered by IDEA part C
Age 3-5-covered by IDEA part B and individual states
Term
The Abecedarian Project
Definition
1972 in North Carolina
-111 families with at risk infants
-randomized control
-1/2 recieved treatment in developmental approach stimulating positive and responsive environment, 5 days/week 50 weeks/year
-10-15 IQ points higher through adulthood
Term
Project Care
Definition
1977
-63 poveraged students
-divided into three groups, one got program and home visits, next got home visits only, the other got no treatment, group 1 was the only one to benefit (10-15 IQ points)
Term
The Infant Health and Development Program
Definition
1992
-985 premature/low birth weight infants
-heavier birthweight, the higher the IQ
-6.5 IQ points higher in lowest birth weight compared to highest birth weight control
-By age 5-8, the gains were not sustained
Term
The Milwaukee Project
Definition
Mothers with IQ less than 75
-home visits for 4 months, program through age 6
-30 points higher in IQ
-18 points higher at age 10
-did not translate to higher achievement in the classroom
Term
The Perry School Project
Definition
Inner City Michigan
-children already diagnosed with developmental delay
-late start treatment (4-5 years)
-Greater IQ at age 6
-At age 15, both groups had same IQ
-Intevention group stayed in school longer, had less teenage pregnancies, less criminal activity, more college attendance
Term
Conclusion from 5 studies
Definition
-Children at high risk of developmental disabilities benefit from an EI program
-Intensity, parent participation, and continuity impact improvement
-different individual outcomes
Term
5 essential operating principles for effective EI programs
Definition
1) multidisciplinary
2) intergenerational
3) individualized for children and families
4) contextually embedded in local service delivery program
5) research oriented using randomized controlled trials
Term
7 essential elements for effective EI programs
Definition
1) timing and duration-birth->age 5 or 6
2) sufficient intensity- 5 days/week, 50 weeks/year
3) direct engagement of child-individualized
4) multiple types of support services-OT, PT, physician, teacher
5) careful monitoring and responsiveness to individual needs
6) follow through to maintain early benefits
7) cultural appropriateness-diverse populations, understand culture before entering home
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