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Child Life Handbook
the child life handbook
104
Social Work
Graduate
10/30/2011

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Term
Supportive Relationships
Definition
those relationships, both clinical and non-clinical, which advocate for psychosocial coping and adjustment.
Term
Therapeutic Relationships
Definition
those relationships, both clinical and non-clinical, in which a goal for providing some sort of healing is established.
- A clear intention by the professional to have some specified impact on the client or patient.
Term
Carl Rogers
Definition
: the theories behind his work led to a therapy that required warmth, genuineness, and positive regard from the therapist toward the patient.
Term
Three types of relationships
Definition
- friendship (Social): mutual needs are met during social interaction
- intimate: involve a partnership with an emotional commitment to one another
- therapeutic (professional):
Term
Phases of the Therapeutic Relationship
Definition
- First phase = initiation or orientation phase. The most important goal for this phase is the establishment of trust. This phase usually includes some sort of introduction, the establishment of the purpose of the interaction and a mutual decision about the plans and logistics for continued interaction.
- Working phase = at this point the professional works towards acheivment of goals as established in the initiation phase.
- Termination: focus is on ending the relationship not on establishing new material.
Term
Three ways in which boundaries are established
Definition
- first there are licensure or certification
- development of ethical standards for each profession – ethical responsibility has been established by the Child Life council
- Implied definitional assumption that professional relationships are to be kept professional
Term
Transference
Definition
In its most basic conceptualization, Freud theorized that when people enter therapy, the way that they see and respond to their therapist will be influenced by two factors; they will see the relationship in light of their earlier ones, especially very early childhood relationships, and they will have a tendency to replay those earlier situations. In other words clients transfer onto their therapist their previous patterns of behavior and response.
Term
countertransfernece
Definition
Responses in the therapist toward their clients
Term
elements of communication
Definition
The elements of communication include speaker, listener, message, channel, feedback and context.
Term
transaction
Definition
Human communicatin is a transactional activity, one in which participants reciprocally influence each other.
Term
Context
Definition
the place whre communication occurs can have an unexpectedly powerful effect on outcome of communication.
- For Child Life: the distraction that are so frequently a part of context need to be recognized and whenever possible steps need to be taken to eliminate them.
Term
Symbolic
Definition
Humans have the unique ability to engage in symbolic activity; to use symbols (words) to stand for objects, actions, concepts and feelings.
- example: the word hospital can frighten a child for whom it means a place filled with frightening instruments and needles while to a child life specialist the word simply means a workplace
Term
Allness Errors
Definition
Humans have the unique ability to engage in symbolic activity; to use symbols (words) to stand for objects, actions, concepts and feelings.
- example: the word hospital can frighten a child for whom it means a place filled with frightening instruments and needles while to a child life specialist the word simply means a workplace
Term
word-thing confusion
Definition
Words can stimulate images and feelings that are so intense that they can replace reality. For example, the word surgery can so frighten children and parents with images of pain and suffering that it obscures the reality of pain management, recovery and the reason for surgery.
Term
Family Centered Care
Definition
an approach to healthcare that is based on mutually beneficial partnerships between patients, families, and healthcare professionals.
Term
Core Principles of Family Centered Care
Definition
1. people are treated with dignity and respet
2. healthcare providers commuicate and share complete and unbiased information with patients and families in ways that are affirming and useful
3. Individuals and families build on their strengths by participating in experiences that enhance control and independence
4. Collaboration among patients, families, and providers occurs in policy and program development and professional education, as well as in the delivery of care.
Term
Stress Potential Assessment Process
Definition
This model encourages the child life specialist to formulate a care plan based on consideration of three categories of information: health care, family, and child variables. By combing an evaluation these variables, the child life specialist assigns a stress potential rating to the patient using a scale of 1-5 with 1 being low stess potential and 5 indicating the highest potential for experiencing stress and coping difficulties.
Term
ACtive responses
Definition
obvious behaviors like hitting, destroying property, or fighting
Term
Passive responses
Definition
: less obvious behaviors like becoming withdrawn, loss of appetite, increased sleeping
Term
Regressive responses
Definition
developing some new behavior that is not consistent with positive development such as changes in sleep patterns, loss of toileting skills, being restless or anxious
Term
developmental vulnerability
Definition
considered most critical, children who are challenged in one or more developmental domain may have a more difficult time coping with healthcare experiences
Term
healthcare play
Definition
a symbolic activity incluging play with medical equipment that elicits concerns, clarifies misconceptions, and discerns coping strategies
Term
Denver II
Definition
is used to screen children ages birth to six years old in four domains: personal-social, fine motor-adaptive, language, and gross motor
Term
The HELP
Definition
(Hawaii Early Learning Profile has been validated in infant, toddler, and preschool versions and includes assessment of multiple domains (cognition, language, gross motor, fine motor, social-emotional, self-help, regulatory and sensory)
Term
Bayley III
Definition
assesses children in five major developmental domains: cognitive, language, motor adaptive behavior, and social-emotional
Term
Benefits of Charting
Definition
- an advertisement for the work of child life
- valuable tool to introduce the chuld life profession and educate others about how the CLS contributes to the care of the patient and family
Term
SOAP
Definition
Subjective, objective, Assessment, plan
Term
workload measurements
Definition
a method of measuring the volume of professional activity
- records the service provided by the child life specialist in direct patient care, indirect patient care, and indirect service as well
- allows the hospital to identify patient-specific resource utilization and cost and provides tangible evidence for justification of resource levels.
- Provides a readily accessible information base to assist with management decision making such as staff allocation and serves as one tool in the evaluation or personnel performance.
Term
Montessori
Definition
“Play is the child’s work” – her writings emphazise that children’s play is a kind of fantasy preparation for adult life, not a substitute for work.
Term
Rousseua
Definition
idea that children might actually need to play. Children had their own way of seeing, thinking, and feeling and adults should allow children the innocence and freedom of childhood by not restricting them to adult ways.
Term
Spencer
Definition
saw play as a way to release surplus energy. He argued that humans have a certain amount of energy that is needed for survival. As survival needs diminish, this pent-up energy must be released. Children do this through play.
Term
Patrick
Definition
suggested an opposite view of play and energy. He theorized that the purpose of play was the renewal of energy wherein children use play to avoid boredom whie they wait for their energy levels to be restored
Term
G. Stanley Hall
Definition
recapitulation theory, in which each person’s development reflects human evolutionary progression. A child’s play framed in present experience might be imitating behaviors of prehistoric ancestors.
Term
General Characteristics defining play
Definition
- Play is intrinsically motivated: this encompasses notions of self-directed activity and freely chosen exploitation that lead to self-satisfaction
- Play involves attention to means rather than an ends: goals are flexible, self imposed, and changeable
- Play may be nonliteral or symbolic
- Play may be free from external rules: there may be rules inside the play but they can be freely changed
- Play requires active engagement
Term
Parten
Definition
observed and identified participation with others as a four step sequence in children’s play.
- nonsocial activity (unoccupied, onlooker behavior, or solitary play)
- parallel play (playing near other children but not trying to influence behavior
- associative play (interacting by exchanging toys and conversation)
- cooperative play (orienteing toward a common goal
Term
functional play
Definition
repeating actions and manipulations, imitating movements and utterances, and manipulating objects
Term
constructive play
Definition
goal-direcrted, creating products, new manipulation of objects, and developing themes
Term
games with rules
Definition
controlled behaviors within given limits, and adjustment to other’s needs.
Term
symbolic play
Definition
use of dramatic situations, substitution of reality with fantasy, and social themes
Term
psychoanalytic
Definition
interpretation of play suggests that young children use play as a medium for self-expression that can reduce anxiety caused by internal conflict. It has been suggested that play serves as a neutralizing medium by which young children manipulate traumatic or anxiety-provoking situations in an attempt to gain mastery over the event.
Term
sigmund freud and anna freud
Definition
- play allows the child to explore unwelcome feelings or socially unacceptable thoughts without fear of adult disapproval. Anna began to use play to establish a therapeutic alliance and to build a relationship with her child patienrs.
Term
Erikson
Definition
suggested that play provides young children with a way of thinking over difficult experiecnes and restoring a sense of mastery over the situation.
Term
the non-directive approach
Definition
The non-directive relationship approach to therapeutic play emphasizes the therapists role in providing an environment in which the child feels accepted, with the therapist communicating a feeling of warmth, reflecting the child’s feelings, giving the child time and permission to lead the way through therapy.
Term
Vygotsky and pretend play
Definition
- maintained that entering the pretend play mode enables young children to approach situations in an as if fashion and to consider experiences not only in the here and now (the concrete reality) but to entertain theoretical ideas.
Term
Emotional readiness or sense of being as prepared as possible to face impending situations, can be fostered by:
Definition
- helping individuals more accurately understand the circumstances and experiences they face
- helping them understand, identify, practice and implement options and strategies they may use to better proceed through the experience
- helping individuals organize their emotional experience to make meaning of the events
Term
- systematic desensitization:
Definition
in which stimuli capable of eliciting fearful, aversive responses in children such as medical equipment are identified and gradually introduced to children over time.
Term
emotional contagion hypothesis
Definition
- Among the elements of the environment considered capable of contributing to children’s distress was the presence of anxious parents
Term
modeling
Definition
buildt upon by Bandura who held that the viewing of life or filmed model who is encountering stressful circumstances similar to that facing a child is likely to increase the probability tht the child will adopt the same behaviors and therefore more successfully complete the procedure.
Term
coping
Definition
cognitive and behavioral efforts to manage specific external and or internal demands that are appraised
Term
stress point preparation
Definition
each of a series of stress points (episodes or events during a health care encounter that are likely to be appraised as threatening) is dentified.
Term
coping strategies
Definition
: are the efforts to manage stressful demands. They may be external observable behaviors or internal processes such as thoughts.
Term
sensory coping strategies
Definition
rely on sound touch, or movement to enhance the child’s coping capacitieis.
Term
cognitive coping strategies
Definition
approaches include those that help reframe or refocus thoughts from negative to positive.
Term
behavioral coping strategies
Definition
approaches introduce behaviors that are compatible with the successful completion of the threatening event.
Term
self directed model of child life leadership
Definition
of leadership have no designated leader and utilize the entire child life staff in the management of the department by distributing, and sometimes rotating, administrative duties and responsibilities.
o The advantages: shared responsibility and accountability, variety in the job role
o Disadvantages: the inhibitiin of relationship development on the managerial level because of increased numbers of people filling the role
• A reduction in opportunities to develop management skills
• Lessened continutity of vision for the program
• Decreaed initimate knowledge of the evolution of the profession on a comprehensive level.
Term
policies
Definition
define the rules for a program and should always be adhered to without variation.
Term
procedures
Definition
are more specific and provide systematic direction to staff in carrying out tasks (ie washing toys)
Term
guidelines
Definition
provide more general direction for the operation of units and programs and are often open to interpretation to meet needs of patients, families, and staff.
Term
care delivery model
Definition
which is a system or structure within a healthcare setting that determines the placement of patient’s on particular units.
Term
Four basic factors to consider when staffing
Definition
o the needs of patient’s and families:
o Volume of patients and families
o Number of child life staff available
o Acceptance and understanding of child life service
Term
supervision
Definition
: a two way relationship between two workers in which the supervisors goal within that relationship is to empower each worker – whether employees or volunteers – to be successful in his or her work.
- Three coomponents of supersion:

educate, managerial, support
Term
compassion fatigue
Definition
sometimes termed secondary traumatic stress disorder, is similar to post traumatic stress except that it influences those who are emotionally impacted by the trauma of others.
Term
clinical advancement systems
Definition
provide opportunities for career development within child life programs and reward child life specilaists who demonstrate high level of skill.
Term
risk management
Definition
an organization wide program to identify risks, control occurences, prevenet damage and control legel liability. Risks to the institution are evaluated and controlled.
Term
budget categories
Definition
- equipment (toys and games)
- expendable crafts and art materials
- office supplies
- funds to travelto confernces
- telephone
- printing
- computers
- dietary supplies
- books and journals
- teaching materials
- miscellaneous
Term
parental stressors
Definition
- Environmental stressors:
o Sounds of monitors, alarms
o Visual stimulation Of equipment
o Observation of other people
o Procedures and surgical intercentions conducted at bedside
- Communication stressors
o Too much or too little info
o Few opportunities for questions
o Inability to interpret staff behaviors
- Concenrs about child’s physical appearance, behavior, and emoitional coping
- Alteractions or deprivations in parenting role
- Concenrs about wellbeing of other children in the family
Term
initial phase of diagnosis
Definition
: prediagnosis and diagnosis, family may face feelings that are as signigicant as those felt during the terminal phase
Term
chronic phase
Definition
the time between the diagnostic phase and the terminal phase. It is during this period that the family realizes the illness and treatment will be a continuing part of their life
Term
terminal phase
Definition
CL may help a child prepare for death by preserving self-concepts, maintaining relationhsips with fam and friends, and expressing feelings and fears.
Term
noncorporeal contuniation
Definition
: refers to the belief in the afterlife or some kind of communication that goes on after the death of the physical body
Term
triparite model
Definition
model for assessing the bereved child, which includes individual factors such as age and past experience; death related factors such as the type of death, and factors related to family, social supports, religion, and culture.
Term
early tasks of grieving
Definition
are those that begin as soon as the child learns of the death. They involve developing understanding or what has happened while protecting oneself against the full emotional impact of the loss
Term
middle tasks of grieving
Definition
include accepting and processing the loss, including the intense psychological pain
Term
grieving needs to indluce
Definition
- understanding and acknowledgement of the reality of death
- grieving or feelings associtated with the loss
- commemorating or keeping alive the memory of the loved one; converting the relationship with the deceased from one of presence to memory.
- Adjusting to a life from which the deceased is missing; developing a new self-identity based on life without the loved one
- Relating the expereience of the loss to a context of meaning
- Going on (going on with fun activities; developing loving relationships with others etc. This does not mean forgetting the person who’s gone
Term
cognitive tasks of grieving
Definition
: understanding what death is, understanding that a loved one is gone forever
Term
emotional tasks of grieving
Definition
grieving, feeling the feeligns associated with loss, expressing emotions
Term
faith and future tasks of grieving
Definition
incorporating the loss in a way that allows personal growth and loving relationships with others, fidning meaning, enjoying positive life-affirming experiences
Term
rationl for children at funerals
Definition
- funerals serve to confirm and reinforce the reality of death
- funerals are important occasion in a family’s life and provide a framework for family support
- funerals are an important source of ritual, providing an opportunity to remember the loved one’s life and to say goodbye
Term
questioning
Definition
not only tends to direct the child’s thoughts and actions but also implies that the objective is for the adult to gain knowledge about the child. Supportive techniques (reflection, paraphrasing, clarifying) sustain the child’s own process, self-understanding, and mastery)
Term
empathetic response
Definition
the ability to step inside someone’s shows and experience the world from their perspective
Term
three guidelines to avoid burnout
Definition
o Know one’s limitations
o Practice active grieving
o To know how to reach out for help
Term
chronic illness
Definition
characterized by a duration of three months or longer or those which necessitate a period of continuous hospitalization fore more than one month.
Term
goals of family adaptation
Definition
o Accept the condition and manage it on a daily basis
o Meet normal developmental needs
o Cope with ongoing stess and crisis
o Manage feeliings
o Educate others
o Establish support systems
Term
competency
Definition
the sense of accomplishment perceived by the child. Chldren need to succeed in order to feel competent; part of that success is mastering their environment. Children who feel self competent may have the internal resources to deal with whatever challenges they may face
Term
post-traumatic play
Definition
this is a type of therapeutic play in which reenactment of the traumatic event occurs. It differs from other forms of play in that it frequently lacks both pleasure and relief. It has a seriousness and intensity uncharacteristic of typical play. This play is very repetitious and usually self-initiated, with mastery of the events demonstated over time.
Term
adaptive play
Definition
defined as play that has been altered in from, complexity, or intent to serve the needs of children with disabilities. It includes modifying the materials, the environment or the process to meet the needs of a child or teen.
Term
activity alternatives
Definition
a CLS may sere as an educator with regards to activity restrictions following traumatic brain injury. Many patients have limitations at discharge that are designed to keep them safe.
Term
guidelines for working with children with neurological defects
Definition
1) allow and engourage the presence of parents and/or other famiair caregivers during assessment and management of pain. They may be better at recognizing signals of pain
2) ensure the child has access to his or her means of communication
3) advocate for children who can’t
4) encourage appropriate pharmacological intervetnions and the least invasive route for dosing when possible
5) ask about or docuent the ways patinets usually expresses stress.
Term
questioning
Definition
not only tends to direct the child’s thoughts and actions but also implies that the objective is for the adult to gain knowledge about the child. Supportive techniques (reflection, paraphrasing, clarifying) sustain the child’s own process, self-understanding, and mastery)
Term
empathetic response
Definition
the ability to step inside someone’s shows and experience the world from their perspective
Term
three guidelines to avoid burnout
Definition
o Know one’s limitations
o Practice active grieving
o To know how to reach out for help
Term
chronic illness
Definition
characterized by a duration of three months or longer or those which necessitate a period of continuous hospitalization fore more than one month.
Term
goals of family adaptation
Definition
o Accept the condition and manage it on a daily basis
o Meet normal developmental needs
o Cope with ongoing stess and crisis
o Manage feeliings
o Educate others
o Establish support systems
Term
competency
Definition
the sense of accomplishment perceived by the child. Chldren need to succeed in order to feel competent; part of that success is mastering their environment. Children who feel self competent may have the internal resources to deal with whatever challenges they may face
Term
post-traumatic play
Definition
this is a type of therapeutic play in which reenactment of the traumatic event occurs. It differs from other forms of play in that it frequently lacks both pleasure and relief. It has a seriousness and intensity uncharacteristic of typical play. This play is very repetitious and usually self-initiated, with mastery of the events demonstated over time.
Term
adaptive play
Definition
defined as play that has been altered in from, complexity, or intent to serve the needs of children with disabilities. It includes modifying the materials, the environment or the process to meet the needs of a child or teen.
Term
activity alternatives
Definition
a CLS may sere as an educator with regards to activity restrictions following traumatic brain injury. Many patients have limitations at discharge that are designed to keep them safe.
Term
guidelines for working with children with neurological defects
Definition
1) allow and engourage the presence of parents and/or other famiair caregivers during assessment and management of pain. They may be better at recognizing signals of pain
2) ensure the child has access to his or her means of communication
3) advocate for children who can’t
4) encourage appropriate pharmacological intervetnions and the least invasive route for dosing when possible
5) ask about or docuent the ways patinets usually expresses stress.
Term
Volunteers need
Definition
-meaningful work, worth their time and effort
- a clear job description
- thorough oritentation
- training do's and don'ts
- a capable supervisor
- opporuntity to give feedback
- appreciation, recognition and rewards
Term
developmental views of death birth to age 3
Definition
infants and toddlers sense there is sadness or anxiety
- impacted by the response of caregiers and significant others around them
- may exhibit changes in sleeping, eatin, and mood, ie increased clinging, decreased appetite, more irritable
- depend on nonverbal communications and consistent nurturing
Term
developmental views of death 3 to 6 years
Definition
May view death as reversible and temporary
- beleive in magical thinking
- interpret words literally (my daddy died from a stomach ache)
- still impacted by emotions of others around them
- abstract concenpt such as heaven may be difficult to understnad
- may revert to earlier stages
may exhibit changes in habits
may hae difficulty being seprated from caregiver
- may escape through play
Term
developnental views of death 6 to 9
Definition
Children begin to view death as final
- increased curiosity about illness and how death affects the body
- worries about how the dead person eats sleep etc
- may think death is something that takes people away or is contagious
- views death as accidental or something that happens to old people but not to them
- may blame self for death and expereincing feelings of guilt
- may have difficulty seperating from caregivers
may exhibit changes in behavior
may have difficutly expressing feelings verbally
Term
Developmental views of death ages 9-12
Definition
Children are more aware of the finality of death
- concerned about how the loss will impact them
- may be reluctant to sahre intially, but later have strong grief reactions
- may be angry and direct anger at a variety of people
- may exhibit a wide range of emotions such as shock, denial, anxiety, fear, depression, or withdrawl
- begin to develop an interest in rituals
- may exhibit changes in behavior at home or in school
Term
developmental views on death adolescents
Definition
- May have an adult understanding of death
- may feel confused, responsible, helpless, angrey, lonley, afraid etc.
- sees self as invincible
- questions the meaning of life and spirituality and beleifs
- sees the aging process leading to death
may engage in risk taking behaviors
may need permission to grieve but choose to grieve with his or her peers and not adults.
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